Do I need a cleaner?

Our time is packed full. We are not busy to be busy. I work every moment to be as efficient as possible. It’s a logistical juggling act to provide Scouts for the boys, wage earning for James, small business for me and caring for Abbey. All activities are constantly assessed for their benefit, and they all continue to rank highly for our mental and physical well being.

As such I finally accepted that the last sliver of what a normal life is to me is gone. I have held onto it for so long as a beacon of normality. This weekend was a ridiculous example of how this is no longer healthy.

For those who have followed this journey for a while, will know I looked into getting a cleaner to assist. Well, I’m back to this point.

The housework took 5 hours on the weekend, instead of the usual 1 to 2 hours due to seizures, Nappy changes, getting ready for school plus all the normal family life stuff. With so little down time or family time, we need to make a change.

I have spent 2 days researching, and the cost is too much. So I’m left wondering how to cheat at housework but maintain cleanliness?

Christmas 2017

…and I thought I was organised for Christmas. I like to be organised as it helps manage the load, but tonight it turns out I’m not. All I can do is laugh.

Here’s the story about Christmas dinner and Christmas stockings.

James and I have been without an oven for 2 years. That’s ok, we have a slow cooker and a deep fryer. No worries. We have saved up and we are ready to buy. Well we ran out of time while he was on holidays to purchase a new oven, especially for our traditional Christmas roast.

That’s ok, let’s get a Webber BBQ and do a roast chook in that. Great idea for Christmas dinner.

Well we ran out of time again over the weekend as we went hard at doing the wheelchair ramp for our front door and forgot!

Now it’s the rundown to Christmas and work schedules are long and still several more meetings for Abbeys’ needs. I’m not going to get to buy a Webber. But it’s ok. We have the slow cooker, not quite what we planned, but it will work.

James and I also spent a day wrapping all of the presents last week as we knew these next 10 days are too full. I usually buy the gifts, but this year I have forgotten about the Christmas stockings. Sheesh!

I’m racking the brain as to what to do and get the kids. Maybe Santa’s presents can be spread out a bit more this year? Ha. It’s all good, we will make it work.

It’s a strange place to be in for our family at the moment. We are processing the palliative status, Abbeys new seizure pattern, NDIS meetings, Christmas, boys excitement and general life!

In sharing our crazy Christmas, I ask you to start a conversation with someone who may be struggling to celebrate the special event in their life. How can you help? Can you be a sounding board?

Photo: very rough day for my girl. A new seizure type is presenting itself. It’s a very sneaky type. You think all is fine, walk away and then the seizure explodes.

Tennille

Photo a day for 2018

On 13 December 2017, I decided to start the 365 day countdown again for a couple of reasons:
– there is so much happening for Abbey and our family, I cannot succinctly put it into a weekly post.
– I am having a lot of trouble keeping everyone updated on our adventures. 
– I have missed meeting new people through this process.
– and I think it’s good for my own mental health.

I hope you will join me for another 365 days sharing my life as Abbeys carer. I can promise it’s not going to be bland!

Today I start with some very bland reading to continue my research for the NDIS. A meeting with our social worker suggestion I go through these thrilling documents to understand what is on offer, then structure our goals for Abbey.

My Abbey is great today. Her ability to walk assisted is coming back, to her great enjoyment. She had a rough week of seizures and walking was a little difficult.

Tennille and Abbey

Little Brothers ROCK!

Abbey cannot be left alone due to the seizures. Never have been able to leave her alone.

This does place a few constraints on the favourite past time of parents, when we whip in and out of a place, leaving kids in the car alone. You know what I mean.

Dan took this picture this morning with his sister while he waits in the car with her. I drop off his brothers to vacation care and sign them in. Once I come out, Dan can go. If while I’m in the building Abbey has a seizure, Dan honks the horn to let me know.

Why don’t I take Abbey out of the car to drop the boys off? Two reasons. One, the wheelchair ramp access is locked and yes, they would unlock it for me if I ask. But more importantly, it’s a pain in the arse to get the wheelchair in and out of the car for a 1 minute pit stop.

Tennille