Do I need a cleaner?

Our time is packed full. We are not busy to be busy. I work every moment to be as efficient as possible. It’s a logistical juggling act to provide Scouts for the boys, wage earning for James, small business for me and caring for Abbey. All activities are constantly assessed for their benefit, and they all continue to rank highly for our mental and physical well being.

As such I finally accepted that the last sliver of what a normal life is to me is gone. I have held onto it for so long as a beacon of normality. This weekend was a ridiculous example of how this is no longer healthy.

For those who have followed this journey for a while, will know I looked into getting a cleaner to assist. Well, I’m back to this point.

The housework took 5 hours on the weekend, instead of the usual 1 to 2 hours due to seizures, Nappy changes, getting ready for school plus all the normal family life stuff. With so little down time or family time, we need to make a change.

I have spent 2 days researching, and the cost is too much. So I’m left wondering how to cheat at housework but maintain cleanliness?

Taking it to the next step….

For several years I have been sharing the journey of being Abbeys’ carer on Facebook with the #365CareAbbey. In 2016/17,  I posted a photo-a-day for 365 days to share the ups and downs, the trials and tribulations, the fun and giggles from being her carer. It was a huge step for me to reach out and to publicise what I need to do everyday for her care. But also to put myself, Abbey and my family in the public eye. As the year progressed, I became more comfortable sharing the strange and wonderful, that is our family.

It started conversations with friends and families.

During 2017, it was a hard year, and I did not post a photo-a-day. Abbeys’ condition deteriorated, my boys needed me and I was myself coming to terms with a changing carer role. I found myself moving more from being her mum to being her carer, nurse and admin assistant.

Now that 2018 is here, I took up the challenge again to post a photo-a-day for 365 days to show how our journey is progressing, but also how it has substantially changed. I invite you to join me on this journey as I make my way back to being her mum.

In being more public about being Abbeys’ carer, I have found I enjoy advocating and sharing the world of being a carer to a person with a disability. Its a different angle for the world to consider. I hope I may provide solace to another carer, that they are not alone. That I may voice our concerns and trials. That I can show its an inspiring role to take on.

This is my first blog post for Voice of a Carer. I look forward to sharing with you my journey, Abbeys journey and my familys’ so that you may start conversations with your family about topics that may be a little uncomfortable. Topics that need to be addressed, but …. (insert excuse here).