Humming Bird Gala Night

It started as a reason to escape for a little while, but ended up being a beautiful readjustment to my reality.

Last night, Abbeys previous carer, Madi and I attended a Hummingbird House Garden Gala Event to raise funds for its continued existence. Every year they need $2million to continue operations. There are 3700 families who need their services, including our family, our Abbey.

If 3700 people donated $37 for 12 months, they are a significant way towards that goal.

It’s as easy as not having 2 take away coffees each week.

A few wines, pretty flower walls, great company and my first live auction made the night magical, and an escape.

The courageous sharing from a Mum and Dad who lost their son last year and what Hummingbird House provided to assist them through that process was too much. A quick dash to the back of the room to cry in ‘private’, but still able to listen to their story, was a slap back to my reality. That will be us one day. Will we be as brave to share our story, our loss, to assist other parents?

For all Hummingbird House give us in support, love, memories and time, we can only try to give back in whatever capacity we can to ensure other parents and siblings have access to this little slice of heaven. This is a very special enterprise.

Going out to parties

Last night we were invited to a friends birthday party. How exciting it was that we were available and everyone was well to attend. We had a fabulous night meeting new families, while taking a moment to stop.

Abbey partied for a short while but then fell into a very deep sleep with lots of seizure activity. Our hosts provided pillows and a warm doona for her. We stayed longer than we thought, so didn’t come too prepared.

Given her situation, James and I played the parenting game, Changing of the Guard. Abbey was showing all of the signs for a big seizure, so we could not leave her side. While one of us chased boys, refreshed drinks or food, the other stood/sat by her side. Then we changed, to give the other a break from watching and socialising.

All up it was 4 hours of socialising and parenting. Today we are exhausted. We are noticing our need to have more recovery time to be able to keep going. At times it’s shocking to the brain, where this is taking us. It’s unchartered for us, but we are learning to go with the flow.