We all deserve peace

A special needs parents journey is never smooth. No matter the disease, illness or disability, it forever follows an unknown journey. We can only provide the love, support and advocacy for our child to make the journey for them that is peaceful and smooth. As a consequence we, the parents or carers, take on the burden, the sacrifice and the sadness that comes. And we do it because we know that life is beautiful and we want our child to experience that beauty.

Today was the one of the hardest day in our journey as Abbey’s parents. Today we had to advise our wishes for resuscitation for end of life.

It’s a horrible experience. We knew it was coming. It’s important to make it easier.

She is our daughter, she deserves peace at all stages of life. And we all – all who share in her life journey – deserve a peaceful end, whenever that may be.